| Saturday, May 17, 2008
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Special Care Resources
We have provided a list of federal, state and local agencies that can assist you and your family with special needs.
Please feel free to contact any of these agencies directly or Contact Us for additional information.
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Search Utahmedicalinjury.com
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Type in a subject in the field below to search our database
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National Resources for Specific Disabilities
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Cerebral Palsy
Kennedy Krieger Institute Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine
707 N. Broadway
Baltimore, MD 21205
(888) 554-2080
(443) 923-9400
(443) 923-9405 (fax)
Http://www.kennedykrieger.org
Ontario Federation for Cerebral Palsy
1630 Lawrence Avenue W.
Suite 104
Toronto, ON
CAN M6L 1C5
(416) 244-96986
(877) 244-9686
(416) 244-6543 (fax)
ofcp@ofcp.on.ca
http://www.ofcp.on.ca
National Brachial Plexus/Erb’s Palsy Association, Inc.
Brenda Copeland-Moore
PO Box 23
Larsen, WI 54947
(920) 836-2151
(209) 644-5813 (fax)
info@nbpepa.org
http://www.nbpepa.org
UCP (United Cerebral Palsy Associations)
1660 L Street NW
Suite 700
Washington, DC 20036-5602
(800) 872-5827
(202) 776-0406
(202) 973-7197 (TDD)
(202) 776-0414 (fax)
national@ucp.org
http://www.ucp.org
United Cerebral Palsy of NYC
80 Maiden Lane
8th Floor
New York, NY 10038-4811
(212) 683-6700
(212) 679-0893 (fax)
www.ucpnyc.org
http://www.ucpnyc.org
Cerebral Palsy
Marta Macdonald, Executive Director
United Cerebral Palsy of UT
1018 West Atherton Drive, Suite A 103
PO Box 70309
West Valley City, UT 84170-0309
(801) 266-1805; (888) UCP-UTAH
E-mail: ucputah@mail.xmission.com
Epilepsy
Paul Sagers, Executive Director
Epilepsy Foundation of Utah
350 South, 400 East
Salt Lake City, UT 84111
(801) 534-0210
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Special Education
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Mr. Karl Wilson, Director
At-risk & Special Education Services
Utah State Office of Education
250 East 500 South
PO Box 144200
Salt Lake City, UT 84111-4200
(801) 538-7587
(801) 538-7991 (fax)
http://www.usoe.k12.ut.us/sars/people.htm
Office of State Coordinator of Vocational
Education for Students with Disabilities
Kenneth Hennefer, Specialist
Transition & Applied Technology
Services for At Risk Students (SARS)
State Office of Education
250 East 500 South
Salt Lake City, UT 84111
(801) 538-7700
E-mail: Khennefe@usoe.k12.ut.us
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Early Intervention
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Connie Nink
619 Coordinator
Department of Education
250 East 500 South
PO Box 144720
Salt Lake City, UT 84114
(801) 538-7948
(801) 538-7991 (fax)
cnink@usoe.k12.ut.us
http://www.usoe.k12.ut.us/sars/links_resources/preschool.htm
Susan Ord
Part C. Coordinator
Baby Watch Early Intervention
State Department of Health
PO Box 144720
Salt Lake City, UT 84114-4720
(801) 584-8441
(801 584-8496
sord@utah.gov
http://www.utahbabywatch.org
Programs for Children with Disabilities:
Ages 3 Through 5
Brenda Broadbent, Preschool Specialist
Special Education Services Unit, State Office of Education
250 East Fifth South
Salt Lake City, UT 84111
(801) 538-7708
E-mail: bbroadbe@usoe.k12.ut.us
Web: www.usoe.k12.ut.us
Programs for Infants and Toddlers with Disabilities:
Ages Birth Through 2
Darla Saunders, EIP Director
Utah Dept. of Health
Community & Family Health Services
Children with Special Health Care Needs - BWEIP
Box 144720
Salt Lake City, UT 84114-4720
(801) 584-8226; (801) 584-8496
E-mail: hlfhs44med.dsaunder@state.ut.us
Web: hlunix.hl.state.ut.us/cfhs/cshcn/babywatch/default.htm
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Vocational Rehabilitation Programs
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Office of Rehabilitation
250 East 500 South
PO Box 144200
Salt Lake City, UT 84111-3272
(801) 538-7530
(801) 473-7530
(801) 538-7522 (fax)
http://www.usor.state.ut.us
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State Protection and Advocacy Agencies for Persons with Developmental Disabilities
and Mental Illness, and the Client Assistance Program
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CAP/PADD/PAIMI/PAIR/
PABSS/TBI/PAVA
Fraser Nelson, Executive Director
Disability Law Center
The Community Legal Center
205 North 400 West
Salt Lake City, UT 84103
(801) 363-1347
(800) 662-9080 (nationwide)
(801)924-3185 (TDD)
(801) 363-1437 (fax)
fnelson@disabilitylawcenter.org
http://www.disabilitylawcenter.org
State Mental Health Agency
Meredith Alden, Director
Division of Mental Health, Department of Human Services
120 North 200 West, 4th Floor
Salt Lake City, UT 84103
(801) 538-4270
E-mail: HSADMIN1.Malden@EMAIL.state.ut.us
State Mental Health Representative For Children and Youth
Mary Ann Williams, Program Coordinator
Division of MH, Department of Social Services
120 North 200 West, 4th Floor
P.O. Box 45500
Salt Lake City, UT 84145-0500
(801) 538-4270
E-mail: HSADMIN1.MWilliams@EMAIL.state.ut.us
State Mental Retardation Program
Sue Geary, Director
Division of Services for People with Disabilities
Department of Human Services
120 North 200 West, #411
Salt Lake City, UT 84103
(801) 538-4200
E-mail: SGeary@email.state.ut.us
Web: www.hsdspd.state.ut.us
State Developmental Disabilities Planning Council
Catherine Chambless, Executive Director
UT Governor’s Council for People with Disabilities
555 East 300 So., Suite 201
Salt Lake City, UT 84102
(801) 533-4128
E-mail: gcpd@state.ut.us
Web: www.gcpd.state.ut.us
Learning Disabilities
Bonnie Hussey, Executive Secretary
Learning Disabilities Association of Utah
P.O. Box 651052
Salt Lake City, UT 84165-1052
(801) 463-3890
Mental Health
Mack Gift, Executive Director
Mental Health Association in Utah
4535 South 5600 West
West Valley City, UT 84120
(801) 963-7337; (801) 963-7304
Lori Cerar and Patricia Baker, Project Co-Coordinators
Allies with Families
4984 So. Commerce Drive, Suite 310
Murray, UT 84107
(801) 281-4425; (877) 335-4627
Harvey Hirschi, President
UT Alliance for the Mentally Ill
4535 South 5600 West
West Valley City, UT 84120
(801) 963-7337
E-mail: namiut@xmission.com
Mental Retardation
Bev Adcock, Executive Director
The Arc of Utah
455 East 400 South, Suite 202
Salt Lake City, UT 84111
(801) 364-5060; (800) 371-5060 (In UT)
E-mail: arcutah2@burgoye.com
Speech and Hearing
Marilyn Price-Larson, President
UT Speech-Language-Hearing Association
P.O. Box 171363
Holladay, UT 84117
(801) 584-1242
Visual Impairments
Gil Johnson, Director
American Foundation for the Blind-West
111 Pine Street, Suite 725
San Francisco, CA 94111
(415) 392-4845
E-mail: sanfran@afb.org
University Affiliated Program
Marvin Fifield, Director
Center for Persons with Disabilities/A Univ. Affiliated Program
Utah State University
Logan, UT 84322-6800
(801) 797-1981
E-mail: marv@cpd2.usu.edu
Web: www.cpd.usu.edu
Technology-Related Assistance
Marvin Fifield, Project Director
Utah Assistive Technology Program
Center for Persons with Disabilities
UMC 6855
Logan, UT 84322-6855
(435) 797-1982; (801) 797-2096 (TTY)
E-mail: marv@cpd2.usu.edu
Web: www.cpd.usu.edu
Utah Center for Assistive Technology
2056 South 1100 East
Salt Lake City, UT 84106-2319
(888) 866-5550; (801) 485-9142 (V/TTY)
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Help for Parents
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Utah No. Salt Lake City (State Org.)
Allies with Families
Lori Cerar
450 East 1000 North, #311
N. Salt Lake City, UT 84117-1377
(801) 292-2515
(801) 292-2680 (fax)
(877) 477–764 (toll free)
awfamilies@msn.com
Parent Training and Information Project
Helen Post, Executive Director
Jennie Gibson, Project Coordinator
Utah Parent Center
2290 East, 4500 South, Suite 110
Salt Lake City, UT 84117
(801) 272-1051 (V/TTY); (800) 468-1160 (In UT)
E-mail: upc@inconnect.com
Parent-To-Parent
Kathie Peterson, Coordinator
Hope – A Parent-To-Parent Network
2290 East 4500 South, Suite 110
Salt Lake City, UT 84117
(801) 856-9795; (800) 468-1160 (In UT)
Parent Teacher Association (PTA)
Barbara Willie, President
Utah Congress of Parents and Teachers
1037 East South Temple
Salt Lake City, UT 84102-1578
(801) 359-3875; (800) 246-3875
E-mail: utah.pta@m.k12.ut.us
Web: www.pta.k12.ut.us
Transition
Kenneth Hennefer, Specialist
Transition & Applied Technology
Services for At Risk Students (SARS)
State Office of Education
250 East 500 South
Salt Lake City, UT 84111
(801) 538-7700
E-mail: khennefe@usoe.k12.ut.us
Gail Kulp, Project Coordinator
Educated Transition Choices (ETC)
2290 East 4500 South, Suite 110
Salt Lake City, UT 84117
(800) 468-1160 (In UT)
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Programs For Children With Special Health Care Needs
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Utah Department of Health
Community & Family Health Services
Children with Special Health Care Needs
44 North Medical Drive
P.O. Box 144610
Salt Lake City, UT 84114-4610
(801) 584-8240
State Agency For The Visually Impaired
Bill Gibson, Director
Division of Services for the Blind and Visually Impaired
250 North 1950 West, #B
Salt Lake City, UT 84116-7902
(801) 323-4343
E-mail: bgibson@usor.state.ut.us
Web: www.usoe.k12.ut.us/usor/usor.htm
Programs For Individuals Who Are Deaf Or Hard Of Hearing
Rusty Wales, Administrator
Utah Community Center of the Deaf and Hard of Hearing
Utah State Office of Rehabilitation
5709 South 1500 West
Salt Lake City, UT 84123
(801) 263-4860 (V/TTY)
(800) 860-4860 (V/TTY, in UT only)
E-mail: wwales@usor.state.ut.us
Web: www.usoe.k12.ut.us/usor/usor.htm
Regional ADA Technical Assistance
Joyce Hume, Director
Rocky Mountain DBTAC
Meeting the Challenge, Inc.
3630 Sinton Road, Suite 103
Colorado Springs, CO 80907
(719) 444-0268 (V/TTY); (800) 949-4232
E-mail: ada-infonet@mtc-inc.com
Web: www.ada-infonet.org
Brain Injury
Ron Roskos, Executive Director
Brain Injury Association of UT, Inc.
1800 South West Temple, Suite 203-22
Salt Lake City, UT 84115
(801) 484-2240; (800) 281-8442 (in UT)
E-mail: biau@sisna.com
Web: www.starpage.com/braininjury
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